Dear stranger
A heartfelt letter from a young boy with Down syndrome (and his mum) to those meeting him for the first time. A gentle challenge to break down fear, ask kind questions, and discover the joy of connection.
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Down Syndrome UK
With you for the journey
Down Syndrome UK is a parent-led organisation providing honest support and expert resources to families and professionals, empowering every child with Down syndrome to thrive.
We've just launched our new socks
Every purchase helps support our work! Make sure to order yours today as a great stocking filler for Christmas. Discounts available for purchases of 3 or more pairs.
Skydive for World Down Syndrome Day
Join us for an unforgettable tandem skydive on Saturday 21 March 2026, organised in honour of World Down Syndrome Day, and help make a real difference for people with Down syndrome and their families. Entry fee is half price at just £35.
Secondary Education Programme
We’re raising funds to create the UK’s first comprehensive online Secondary Education Programme – filling the critical gap that leaves too many families without adequate support during this crucial transition.
Freya's story
Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family
Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.
Since birth we have been supported by DSUK with online physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training and preparing for school.
Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.
Starting Primary School
As our children start primary school years, we provide support, training and resources to both parents and professionals.
Through collaboration, advocacy, and sharing best practices, we strive to build a world where diversity is celebrated, barriers are dismantled, and every child’s potential is realised.
Join us for one of our upcoming events
Read our blog
Teaching pupils with Down syndrome: strategies to support literacy
Dr Becky Baxter shares four key strategies to develop reading and writing skills in pupils with Down syndrome. Learn practical ways to build sight words, teach phonics, support comprehension, and improve handwriting.
Using Makaton to support communication in early years settings
Discover how Makaton can support communication, understanding and inclusion in early years settings. Learn simple ways to use signs and symbols in daily routines, play and stories, and find out about Down Syndrome UK’s Makaton for Nursery Settings course.
We've launched our new socks!
Discover our range of gifts that make a difference – from soft, colourful socks and empowering clothing that help raise awareness of Down syndrome, to beautiful Christmas cards and festive gifts designed by talented artists with Down syndrome. Every purchase supports Down Syndrome UK and helps us continue our vital work for children, families, and schools across the UK.
Maternity Resources
It is important when discussing antenatal screening tests and results, that language used is respectful and accurate. Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.
We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.
If you are a health care professional and would like to display/offer our resources, please get in touch.
