When you should ask a healthcare professional to think again
When symptoms are assumed to be part of Down syndrome, real conditions can be missed. What to ask, when to push, and how Martha’s Rule can help.
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Down Syndrome UK
With you for the journey
Down Syndrome UK is a parent-led charity working hard to challenge outdated stereotypes and raise expectations for individuals with Down syndrome.
Freya's story
Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family
Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.
Since birth we have been supported by DSUK with online physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training and preparing for school.
Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.
Starting Primary School
As our children start primary school years, we provide support, training and resources to both parents and professionals.
Through collaboration, advocacy, and sharing best practices, we strive to build a world where diversity is celebrated, barriers are dismantled, and every child’s potential is realised.
Join us for one of our upcoming events
Various dates
This two-hour online session introduces Primary staff to the Makaton language programme, teaching approximately 40 signs and symbols (including 20…
Various dates
This two-hour online session introduces Early Years staff to the Makaton language programme, teaching approximately 40 signs and symbols (including…
Sun, October 18, 2026 10:00 AM
There is no single pathway through adulthood. Every person with Down syndrome is unique, and planning for adult life should…
Mon, October 19, 2026 08:00 PM
Online information sharing session on developing speech, language and communication in the home for children aged 5-11 years. Sign up…
Tue, October 20, 2026 08:00 PM
This online session looks at key developmental communication behaviours and covers practical strategies and resources to encourage and enable communication…
Wed, October 21, 2026 03:30 PM
This free webinar is for staff working with a pupil with Down syndrome in a primary setting.
Read our blog
Supporting children through loss: Parent tips
Explaining death to a child with Down syndrome can feel hard. Families share what helped, including social stories, photo books and honest conversations.
Early developmental milestones and Down syndrome: How parents can support their child’s development
Understand how developmental milestones may differ for children with Down syndrome, and get practical tips to support your child’s progress at home.
We've launched our new socks!
Discover our range of gifts that make a difference – from soft, colourful socks and empowering clothing that help raise awareness of Down syndrome, to beautiful Christmas cards and festive gifts designed by talented artists with Down syndrome. Every purchase supports Down Syndrome UK and helps us continue our vital work for children, families, and schools across the UK.
Maternity Resources
It is important when discussing antenatal screening tests and results, that language used is respectful and accurate. Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.
We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.
If you are a health care professional and would like to display/offer our resources, please get in touch.
