Experts by experience

Down Syndrome UK

Down Syndrome UK (DSUK) is a national charity passionate about empowering parents and professionals to improve the lives of those with Down syndrome and their families in the UK.


Freya's story

Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family.

Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.

Since birth we have been supported with physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training.

Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.

Maternity Resources

It is important when discussing antenatal screening tests and results, that language used is respectful and accurate.  Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.

We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.

If you are a health care professional and would like to display/offer our resources, please get in touch.


Join us for one of our upcoming events

Starting School

For children with Down syndrome starting school in September 2024.

Resources that challenge, educate, and empower parents who have a child with Down syndrome and professionals who work with them.


Raise awareness wherever you go!

Pop onto our shop and browse our Down Syndrome UK merch! We now have various t-shirts, bags, window stickers, bags and more.

We’ve also put together Nursery and Primary School Information Packs to empower parents and the professionals working with our children.

What our families say