Down Syndrome UK
Our vision
At DSUK we are proud to work hard towards achieving our vision of a world where everyone with Down syndrome lives their best life.
We've launched a blog
Welcome to a trusted resource dedicated to empowering families, educators, and individuals within the Down syndrome community. Our blog offers evidence-based guidance, practical strategies, and inspiring stories that make a real difference in daily life.
What You’ll Find:
- Expert Advice from leading professionals like June Rogers MBE, with proven approaches to developmental milestones and everyday challenges
- Practical Solutions that work in real-world situations, from toilet training strategies to educational support
- Community Stories that celebrate achievements and share valuable experiences
- Evidence-Based Information to help you make informed decisions about health, education, and development
Whether you’re a parent seeking guidance, a professional looking for resources, or someone wanting to better understand Down syndrome, our blog provides reliable, compassionate support backed by years of expertise.
Freya's story
Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family
Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.
Since birth we have been supported by DSUK with online physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training and preparing for school.
Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.
Starting Primary School
As our children start primary school years, we provide support, training and resources to both parents and professionals.
Through collaboration, advocacy, and sharing best practices, we strive to build a world where diversity is celebrated, barriers are dismantled, and every child’s potential is realised.
Join us for one of our upcoming events
Maternity Resources
It is important when discussing antenatal screening tests and results, that language used is respectful and accurate. Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.
We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.
If you are a health care professional and would like to display/offer our resources, please get in touch.
Raise awareness wherever you go!
Pop onto our shop and browse our Down Syndrome UK merch! We now have various t-shirts, bags, window stickers, bags and more.
We’ve also put together Nursery and Primary School Information Packs to empower parents and the professionals working with our children.