More Than a Charity: Why We’re So Proud of What We’ve Achieved Together
Our 2024/25 Annual Report is here. See the difference your support made, from parent support to professional training and maternity research.
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Down Syndrome UK
With you for the journey
Down Syndrome UK is a parent-led charity working hard to challenge outdated stereotypes and raise expectations for individuals with Down syndrome.
Freya's story
Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family
Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.
Since birth we have been supported by DSUK with online physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training and preparing for school.
Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.
Starting Primary School
As our children start primary school years, we provide support, training and resources to both parents and professionals.
Through collaboration, advocacy, and sharing best practices, we strive to build a world where diversity is celebrated, barriers are dismantled, and every child’s potential is realised.
Join us for one of our upcoming events
Read our blog
Supporting your child with Down syndrome to stay hydrated during hot weather: Parent tips
Looking for ways to keep your child with Down syndrome hydrated during hot weather? Parents share practical tips on encouraging fluids, cooling down and making hydration easier during a heatwave.
Education professionals: how to plan for a successful transition
Big transitions such as starting school or moving to a new room in nursery are exciting, but can also feel daunting for children, their families, and the staff supporting them. A smooth transition doesn’t happen by chance, it’s built through clear communication, shared expectations, and plenty of time for everyone to get to know one another. With thoughtful planning, we can help children and staff feel secure, confident, and ready for what comes next.
We've launched our new socks!
Discover our range of gifts that make a difference – from soft, colourful socks and empowering clothing that help raise awareness of Down syndrome, to beautiful Christmas cards and festive gifts designed by talented artists with Down syndrome. Every purchase supports Down Syndrome UK and helps us continue our vital work for children, families, and schools across the UK.
Maternity Resources
It is important when discussing antenatal screening tests and results, that language used is respectful and accurate. Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.
We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.
If you are a health care professional and would like to display/offer our resources, please get in touch.
