Expecting a baby

Welcome and congratulations on your pregnancy!

If you’ve discovered your baby has or may have Down syndrome, you may be worried and afraid, unsure of what your future holds and what life will look like. At Down Syndrome UK we understand, and we are here for you; you are not alone.

We are here to support you throughout your pregnancy and beyond, when baby arrives our care and support continues. We are parents who understand the reality of parenting a child or young person with Down syndrome, and we know that while there may be challenges – as there are for any parent – we also know and are proud to say that our children and young people are loved, valued members of our families and communities who we would not be without. So, do please take a read of our stories to see that while many of us had worries and concerns, we now lead happy and ordinary lives.

Join our Great Expectations Facebook Support Group

It can all be very overwhelming in the early days, so we are here to help you as and when you need information and signposting. Our non judgemental Facebook groups will support you throughout your pregnancy and beyond, when baby arrives our care and support continues.

Our #NobodyToldMe book

If you’ve discovered your baby has or may have Down syndrome, you may be worried and afraid, unsure of your future and what life will look like.  At DSUK Positive about Down syndrome we understand, and we are here for you; you are not alone. 

Please take a look at our fabulous book #NobodyToldMe the truth about Down syndrome – full of photos and stories, written by people with Down syndrome, their families and friends.

Breastfeeding Guide

There are many outdated perceptions and myths around Down syndrome, one being that ‘babies with Down syndrome can’t breastfeed’.

We share this guide to give you and your baby the best chance possible to breastfeed successfully. We want to not only educate and empower new and expectant mums, but also the medical professionals who are supporting within the community.

We hope this guide will provide you with all the information you need to enjoy a successful breastfeeding relationship with your baby.

We're all in this together...

We are parents who understand the reality of parenting a child or young person with Down syndrome, and we know that whilst there may be challenges – as there are for any parent – we also know and are proud to say that our children and young people are loved, valued members of our families and communities who we would not be without. So, do please take a read of our stories to see that whilst many of us initially had worries and concerns, we now lead happy and ordinary lives. 

Resources and Information

We have an abundance of information about having a baby with Down syndrome – from breastfeeding to support you’ll be entitled to. Grab a cuppa and have a look through. If anything is missing, we’d love to hear from you to help future parents too.

Find your local support group

We provide a huge amount of support and information online that is available 24/7; however, we really value and appreciate the importance of local support groups for children and young people with Down syndrome to make local friendship circles, as well as to access local specialist services.