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Heart surgery: stories from parents

By Natasha Aidinyantz22 October 2026

A collection of parents’ stories about their children with Down syndrome having heart surgery, with top tips and useful contacts, to help families feel more prepared and less alone.

Dear future teacher: a letter from Willow

By Natasha Aidinyantz22 October 2026

A heartfelt letter written by a mum in the voice of her five-year-old daughter, Willow, to her future teacher. It helps teachers see the child first and feel reassured about welcoming a pupil with Down syndrome.

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©2025 Down Syndrome UK
Down Syndrome UK is a charity registered in England and Wales 1184564

Go to Top
  • About
    • Our Services
    • About Down Syndrome UK
    • Our Vision and Mission
    • What is Down syndrome?
    • Who we Support
    • Our Impact
    • Positive about Down syndrome
    • Campaigning
    • Research
    • Meet the team
    • Our Patrons
    • Jobs
    • Contact us
  • Parents
    • Expecting a baby
      • Frequently asked questions
    • New Parents
      • Frequently asked questions
      • Breastfeeding & Weaning
    • Preschool
    • Primary School
    • Secondary School
    • Young People and Adults
    • Adult social care
    • Dads
    • Grandparents
    • Transitions
    • Toilet Training
    • Online Community Groups
    • Local Support Groups
    • Health
    • Wellbeing
    • Guide to Financial Planning
  • Professionals
    • Early Years Education
      • Early Years Development Programme
    • Primary Education
      • Primary Education Programme
      • Individualised behaviour support service
    • Secondary Education Programme
    • Transitions
    • Free healthcare training
    • Health Visitor
    • Maternity Care
    • Paediatrician
    • Health
      • Alopecia
      • Audiology
      • Constipation
      • Diabetes
      • Eye Care
      • Feeding
      • Heart
      • Hirschprung’s Disease
      • Infantile Spasms
      • Infections
      • Maternity Care
      • Physical Development
      • Sleep Apnoea
      • Speech and Language
      • Toilet Training for professionals
      • Wellbeing
  • Resources
    • Blog & News
    • About Down syndrome
      • Advocates with Down syndrome
      • Family stories
      • New parent book
    • Expecting a baby
    • New Parents
    • Preschool
    • Primary School
    • Toilet Training
    • Health
    • Podcasts
  • Training
  • Support us
    • Donate
      • Donate now
      • Leave a gift in your will
      • Help us keep our education programmes free
    • Fundraising & events
      • Find a fundraising event
      • Organise your own event
      • Join us at an in-person event
      • World Down Syndrome Day
      • Down Syndrome Awareness Month
      • Paying in your fundraising
    • Corporate giving
    • Shop with us
    • Volunteer
  • Shop