Tuesday top tips – welcoming a new baby in the family
Practical guidance for helping a child with Down syndrome adjust to a new sibling, with real parent experiences and gentle strategies to support connection and confidence.
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Down Syndrome UK
With you for the journey
Down Syndrome UK is a parent-led organisation providing honest support and expert resources to families and professionals, empowering every child with Down syndrome to thrive.
We've just launched our new socks
Every purchase helps support our work! Make sure to order yours today as a great stocking filler for Christmas. Discounts available for purchases of 3 or more pairs.
Skydive for World Down Syndrome Day
Join us for an unforgettable tandem skydive on Saturday 21 March 2026, organised in honour of World Down Syndrome Day, and help make a real difference for people with Down syndrome and their families. Entry fee is half price at just £35.
Secondary Education Programme
We’re raising funds to create and deliver the UK’s first Down syndrome specific Secondary Education Programme. From the 2-9 December, all donations up to £6,000 will be doubled as part of the Big Give Christmas Challenge!
Freya's story
Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family
Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.
Since birth we have been supported by DSUK with online physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training and preparing for school.
Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.
Starting Primary School
As our children start primary school years, we provide support, training and resources to both parents and professionals.
Through collaboration, advocacy, and sharing best practices, we strive to build a world where diversity is celebrated, barriers are dismantled, and every child’s potential is realised.
Join us for one of our upcoming events
Read our blog
What is The Down Syndrome Act 2022?
Discover how the Down Syndrome Act 2022 is creating real change by ensuring public bodies meet the needs of people with Down syndrome.
Not a Level Playing Field – or Ballroom, or Classroom
When Ellie Goldstein danced on Strictly, it showed what true inclusion can look like. At Down Syndrome UK, we believe equity, not equality, helps everyone shine.
We've launched our new socks!
Discover our range of gifts that make a difference – from soft, colourful socks and empowering clothing that help raise awareness of Down syndrome, to beautiful Christmas cards and festive gifts designed by talented artists with Down syndrome. Every purchase supports Down Syndrome UK and helps us continue our vital work for children, families, and schools across the UK.
Maternity Resources
It is important when discussing antenatal screening tests and results, that language used is respectful and accurate. Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.
We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.
If you are a health care professional and would like to display/offer our resources, please get in touch.
