Using AI to prepare for healthcare appointments: a guide for parents
A guide for parents on using AI tools such as ChatGPT to organise questions and notes before medical appointments, with example prompts and tips on keeping personal details safe.
Heart surgery: stories from parents
A collection of parents’ stories about their children with Down syndrome having heart surgery, with top tips and useful contacts, to help families feel more prepared and less alone.
Physiotherapy: information sheet for primary staff
Guidance for primary staff on supporting pupils with Down syndrome to develop motor skills and walking, and how physical development links to attention and learning in the school day.
Vision and eye care: information sheet for primary staff
Helps primary staff make sure pupils with Down syndrome can see learning materials clearly, building on vision as a common strength and explaining simple ways to adapt visual resources.
Hearing and Down syndrome: information sheet for primary staff
A practical guide for primary staff on why pupils with Down syndrome are more likely to have hearing difficulties, the types of hearing loss and how to help pupils hear and learn in class.
Understanding potential health issues: information sheet for primary staff
An overview for primary staff of health conditions that are more common in people with Down syndrome, how to look out for them and how they might affect learning and wellbeing at school.
SEP: introduction to the learning profile
An overview of the typical learning profile of students with Down syndrome, including visual learning strengths, memory, communication and health needs. Helps secondary staff plan teaching that builds on strengths.
Laxative guidelines
A guide for families to the laxatives commonly used for children in the UK, including how softeners and stimulants work and how to give them. Supports parents to follow their healthcare professional’s advice with confidence.
Why constipation should always be treated with laxatives
Explains, with simple pictures, how untreated constipation stretches the bowel and why laxatives may be needed for a long time. Helps parents understand treatment and talk with their child’s doctor.
Facts about constipation
Key facts for families about constipation in children with Down syndrome, why it needs treating and simple ways to help prevent it. Helps parents know when to seek advice and what to ask for.