As children with Down syndrome approach and move beyond 16, families are often faced with changes to benefits and new systems to navigate.
This on-demand session explains what happens to Disability Living Allowance (DLA) when your child turns 16, how this may affect other benefits you are receiving, and what support is available as your child moves into adulthood. It also covers becoming an appointee for your child and how to access and manage Universal Credit, including relevant allowances.
The session begins with a short, clear presentation, followed by a focus on real questions and common concerns raised by families.
The session is hosted by Lisa Holden, a parent to Bobby, who has Down syndrome. Lisa previously worked as an advisor at the Department for Work and Pensions (DWP) and brings extensive experience supporting families to apply for DLA and PIP, alongside lived experience of navigating the system as a parent.
Families can watch on demand, at their own pace, and return to the information whenever they need it.
