A personal reflection on pregnancy, birth, and receiving a Down syndrome diagnosis as a Black mother in the UK. Why lived experiences must shape healthcare conversations. By Tonye Faloughi-Ekezie and Black Child Down Syndrome Project
A practical parent guide to probiotics for children with Down syndrome. Learn about gut health, constipation, antibiotics, safety and choosing the right strains.
Support pupils with Down syndrome in PE and breaktimes. Create inclusive, engaging environments that build confidence, participation and social skills.
Real parent tips on choosing an inclusive nursery for children with Down syndrome. Practical advice on settling in, SEND support, communication and what to expect.
June Rogers MBE, independent Paediatric Continence Specialist, shares practical strategies to help you feel confident supporting children with Down syndrome in your setting.
This week, parents in our community shared their real-life experiences of flying with their children. From first short-haul trips to multiple long-haul adventures, their tips show there’s no one ‘right’ way – just what works for your family.
Discover picture books and stories that feature children with Down syndrome, alongside simple ideas for using them in school and nursery classrooms.
New research reveals the emotional toll on mothers of children with Down syndrome who experience nasogastric (NG) tube feeding without clear information, support or exit planning.
Learn how nursery and early years staff can support the visual learning needs of children with Down syndrome through simple, effective adaptations.
Explore strategies to promote positive behaviour for pupils with Down syndrome in primary schools, focusing on accessibility, communication and independence.
Practical classroom strategies to support numeracy for pupils with Down syndrome, focusing on language, memory, counting, number sense, time and money.
Practical early reading strategies for children with Down syndrome. Learn how shared reading, whole-word approaches and clear print can build confidence and communication in early years settings.
Discover parent-led tips from the DSUK community on tiny wellbeing moments that can help busy parents reset, feel grounded and get through overwhelming days.
Discover gentle, practical parent-recommended tips to help children with Down syndrome feel calmer, more confident and in control during hair washing and bath time.
Discover practical tips for preparing children with Down syndrome for hospital visits, reducing stress and supporting positive experiences. Real advice from parents plus additional expert suggestions.
Practical advice from parents on choosing early footwear for children with Down syndrome – including barefoot options, supportive styles, fitting tips, and ways to build comfort and confidence.
Discover practical, evidence-based approaches to support positive behaviour, communication and learning for young children with Down syndrome in early years settings.
A warm, practical letter from teacher and mum Vicky to a future colleague welcoming a young person with Down syndrome. She shares reassurance, real insight and the importance of belonging, collaboration and high-quality support as they begin their secondary school journey.
Practical strategies to build handwriting and tool-use skills for pupils with Down syndrome. Learn how environment, tools and activities support confidence and success.
A powerful parent letter to future secondary school SENCos, highlighting why students with Down syndrome belong, how the learning profile supports inclusion, and how understanding, collaboration and evidence-based strategies help every child thrive.
Practical guidance for helping a child with Down syndrome adjust to a new sibling, with real parent experiences and gentle strategies to support connection and confidence.
Discover how the Down Syndrome Act 2022 is creating real change by ensuring public bodies meet the needs of people with Down syndrome.
When Ellie Goldstein danced on Strictly, it showed what true inclusion can look like. At Down Syndrome UK, we believe equity, not equality, helps everyone shine.
Practical tips from parents to help children with Down syndrome adjust to wearing glasses or hearing bands. Real experiences, gentle strategies, and everyday routines to build confidence.
A powerful letter from a mother to her sons’ future employer, urging businesses to see beyond assumptions and embrace the value, talent and diversity people with Down syndrome bring to the workplace.
A heartfelt letter from a young boy with Down syndrome (and his mum) to those meeting him for the first time. A gentle challenge to break down fear, ask kind questions, and discover the joy of connection.
Dr Becky Baxter shares four key strategies to develop reading and writing skills in pupils with Down syndrome. Learn practical ways to build sight words, teach phonics, support comprehension, and improve handwriting.
Discover how Makaton can support communication, understanding and inclusion in early years settings. Learn simple ways to use signs and symbols in daily routines, play and stories, and find out about Down Syndrome UK’s Makaton for Nursery Settings course.
Discover parent-led tips for finding inclusive after-school and hobby clubs for children with Down syndrome. Real experiences, practical advice, and ideas to help children thrive.
A heartfelt letter from a newborn girl with Down syndrome to her future adopted sisters. A powerful story of IVF, adoption, love and the unbreakable bond that will make them an extraordinary team.
Practical tips from parents to help children with Down syndrome adjust to wearing glasses or hearing bands. Real experiences, gentle strategies, and everyday routines to build confidence.
Discover parent-led advice and practical strategies to support age-appropriate activities for children with Down syndrome. Celebrate individuality while encouraging independence, play and confidence.
A powerful letter from a mother to the consultant who offered to end her baby’s life at 38 weeks due to Down syndrome. A call for compassion, dignity and a reminder that every life deserves joy, respect and hope.
A beautiful letter from Heidi Carter, a proud Down syndrome advocate, written to her parents at birth. A message of reassurance, joy and future achievements that prove there is so much to celebrate.
Families from Saltash in Cornwall to Dromara in Northern Ireland have already raised more than £11,000 this October for Down Syndrome UK’s Big PADS Push, a campaign bringing communities across the UK together to mark Down syndrome awareness month.
A powerful letter to a new mum processing her baby’s Down syndrome diagnosis. An emotional journey from grief to deep love, reminding us that the child we have is exactly who they’re meant to be.
Discover practical strategies to support speech, language and communication in early years settings for children with Down syndrome. Learn tips for building vocabulary, promoting speech, and encouraging social interaction.
Discover practical strategies to support vision and hearing in pupils with Down syndrome. Learn how simple classroom adjustments can reduce barriers, boost confidence, and help every child thrive.
A raw, funny and fiercely uplifting letter to a new mum coming to terms with a Down syndrome diagnosis. A powerful reminder that love, laughter and fierce pride are just around the corner.
Sharing the news that your baby has Down syndrome can feel overwhelming. Discover real parents’ experiences, gentle advice, and reassurance that you’re not alone.
Discover practical toothbrushing tips for children with Down syndrome. Parents share creative strategies – from songs and games to tools and routines – to make brushing easier and more fun.
A heartfelt letter from a dad to his past self, capturing the emotional journey of raising a child with Down syndrome. A message of honesty, growth and the unstoppable love that changes everything.
Discover real-life strategies from parents to support bedtime routines for children with Down syndrome, including sensory calming, routines, rewards, and self-soothing.
Discover real-world weaning tips from parents of children with Down syndrome – from baby-led weaning and purées to embracing mess and following your baby’s lead.
A joyful letter from a man with Down syndrome to his future wife, full of hope, pride and ambition. A celebration of love, independence and challenging outdated expectations — together, anything is possible.
Discover practical strategies for supporting children with Down syndrome in nursery and EYFS settings. Learn how to use visuals, adapt routines, build speech and language skills, and create inclusive environments where every child can thrive.
Discover targeted strategies for teaching pupils with Down syndrome. Build on their learning strengths, address challenges, and create inclusive classrooms where every child can thrive.
Real-life travel tips from parents of children with additional needs, from sensory comfort hacks to using special assistance. Discover ideas to make holidays less stressful and more enjoyable for the whole family.
Haircuts can be tricky for children with Down syndrome. Discover real parent tips on finding the right barber, trying home haircuts, using routines, and keeping haircuts calm and positive.
Discover Down Syndrome UK’s education services for nurseries and schools, plus support for parents, behaviour and communication.
A powerful letter from a premature baby with Down syndrome to the intensive care team who fought for his life. A message of gratitude, hope and humanity — reminding us all what compassionate care can do.
Discover real-life parent tips on swimming and water confidence for children with Down syndrome. From lessons and equipment to encouragement and routines, here’s what helps.
Discover practical strategies, resources and funding guidance to support a child with Down syndrome in mainstream primary school. Tips for teachers and professionals on inclusion, communication, learning and EHCPs.
Discover practical tips for supporting children with Down syndrome to make friends, build confidence and connect with others. Advice from parents and additional expert suggestions.
A powerful letter to a new mother processing her baby’s Down syndrome diagnosis. A message of love, cultural honesty and hope — reminding her that her voice, her pride and her daughter will change everything.
Discover practical strategies to support children with Down syndrome in settling into nursery. From preparation and communication to routines and social interaction, these tips help create a smooth and positive transition.
A heartfelt letter from a young boy with Down syndrome (and his mum) to those meeting him for the first time. A gentle challenge to break down fear, ask kind questions, and discover the joy of connection.
Discover practical strategies and funding guidance for nurseries supporting children with Down syndrome, including SENIF, DAF and training resources.
A heartfelt letter from one parent to another, challenging assumptions about children with Down syndrome and celebrating the strength, kindness and determination they bring to school life — and to our children’s friendships.
Helping children with Down syndrome settle into primary school requires careful planning and collaboration to create a learning environment tailored to their individual needs. Here’s how to make the transition smoother:
Ahead of National Learning Disabilities Week (16th – 22nd June), national charity Down Syndrome UK (DSUK) is celebrating the fact that more children with Down syndrome than ever before are thriving in mainstream education.
A moving letter from a young child with Down syndrome to their health visitor, offering a fresh perspective on ability, progress, and potential. A reminder to approach every visit with openness, warmth and high expectations.
A powerful letter from a newborn baby with Down syndrome to the medical professionals delivering the diagnosis. A must-read message for doctors and nurses about compassion, language, and the lasting impact of their words.
A heartfelt letter from a child with Down syndrome to their future teacher, helping educators understand their unique strengths and needs. Use this template for your own child.
Just discovered you’ll be teaching a child with Down syndrome? This introductory guide covers everything you need to know to create an inclusive, supportive classroom environment where every child can thrive.
Essential guide to applying for an EHCP for children with Down syndrome. Learn the assessment process, required professionals, timelines, and how to secure the right support for your child’s education.
As we reflect on our fifth year as a registered charity, we’re filled with immense pride at what we’ve accomplished together. From expanding our educational support to reaching thousands of families across the UK, 2023/24 has been a year of remarkable growth and impact.
Discover the inspiring story of Josie Rice and Lloyd Martin’s London Marathon journey. Learn how their partnership is breaking barriers in sport for people with Down syndrome and creating lasting change in their community. Find out how you can support Down Syndrome UK’s mission.
Essential guide for parents managing constipation in children with Down syndrome. Learn about different types of laxatives, proper dosages, and safe administration methods from healthcare professionals.
Down Syndrome UK has welcomed the Health Secretary’s announcement of a national investigation into maternity care standards, emphasising the need for inclusive care that recognises and supports the diverse experiences of all families, including those receiving a Down syndrome diagnosis during maternity care.
We’re delighted to announce that Little Wights Clothing, a beautiful small business based on the Isle of Wight, has chosen Down Syndrome UK as their charity of the year for 2025. Behind this heartwarming partnership is a personal story.
Ahead of National Learning Disabilities Week (16th – 22nd June), national charity Down Syndrome UK (DSUK) is celebrating the fact that more children with Down syndrome than ever before are thriving in mainstream education.
Justine, PADS parent and mum of Toby, explains how she discovered the Learning a New Way AQA Unit Award Scheme Centre and has been using them to progress Toby’s education.
Explore the unique speech, language and communication profile of Down syndrome. Learn about challenges and strengths for effective speech and language therapy support.
Discover our proven 4-step toilet skill development programme that challenges common readiness myths. Expert guidance from June Rogers MBE on toilet training for children with Down syndrome.
Learn about delaying, deferring, and repeating school start for children with Down syndrome. Access expert advice, support resources, and official guidance links to make informed decisions for your child’s education journey.
DSUK CEO, Nicola Enoch shares her story with the Maternity & Midwifery Forum’s #midwiferyhour podcast. She offers advice on the importance of language, sensitivity, and best practices when delivering a Down syndrome diagnosis.
The Mental Capacity Act 2005 empowers individuals with Down syndrome to make their own decisions and ensures their rights are protected when they can’t. This guide helps families understand the Act and plan for their loved one’s future.
Planning for the future means ensuring your loved one with Down syndrome has the right support in place. Lasting Powers of Attorney (LPA) let a trusted person make decisions if your child loses capacity, while Deputyship provides a solution if no LPA is in place. In this post, we explain both options and how to protect your child’s best interests.
Trusts are a powerful way to protect the financial future of a loved one with Down syndrome. They allow families to provide for their child’s needs while safeguarding means-tested benefits and shielding them from financial risks. In this blog, we explain how Trusts work, the types available, and why creating the right Trust can provide peace of mind for years to come.
Planning for the future is essential for families of people with Down syndrome. A well-drafted Will doesn’t just distribute your assets – it protects your child’s inheritance, safeguards their means-tested benefits, and shields them from financial risks. In this post, we break down why a simple Will may not be enough, how specialist Trusts can help, and the steps you can take to provide lasting security and peace of mind for your loved one.
Discover Nicola Enoch’s inspiring journey from despair to advocacy for families of children with Down syndrome. Listen to her powerful conversation on the Wild Card Whose Shoes podcast for World Down syndrome Day.
